Jan 29 2019
This past fall, we conducted a stakeholder survey to help better inform planning our programs, services and communications. To summarize, we asked stakeholders about programs and services and which advocacy issues were important to them, fostering a better understating of the experience of those personally diagnosed with schizophrenia or psychosis and their caregivers. What we heard was: people wanted to see more programs and services geared to better support families and caregivers, assistance with housing and employment, as well as education of general public to raise awareness and reduce misunderstanding of schizophrenia and psychosis.
Another area of importance for most people was support and access to various services or treatments, indicating a need to continue advocating for families to help with the financial burden due to the high costs associated with the health care bills related to schizophrenia and psychosis.
The profile of respondents we surveyed included our members, individuals living with mental illness, their families and caregivers as well as health care providers and other community frontline workers.
Here are the survey results in more detail:
- SSO firmly seen as an advocate for people living with schizophrenia and psychosis and an organization that provides meaningful support through education and resources
- Most people thought SSO communicates openly, makes a difference in the community and works with experts to provide programs and services
Programs & Services
- Cognitive Behavioural Therapy (CBT), Speakers Bureau, Policy and Advocacy and Strengthening Families Together (SFT) are the most popular programs
- Those who used our programs and services generally found them quite helpful, indicating benefits such as:
-Improving their ability to work with people living with schizophrenia and psychosis
-Coping with living with schizophrenia and psychosis (among those diagnosed)
-Improving their understanding of schizophrenia and psychosis
-Improving their/a family member’s access to community-based mental health services, access to social supports or access to psychiatric care
-Participants in SSO’s CBT for psychosis-informed caregiver training had positive experiences, improving their ability to support individuals experiencing psychotic symptoms but also to manage the personal toll of being a caregiver
-Similarly, participants in the professional CBT-p training said it improved their understanding of schizophrenia and psychosis and improved their ability to support distressed individuals or those experiencing psychotic symptoms. Many agree the training provided helpful strategies on how to treat symptoms and improve medication adherence.
-Those who used our services were most likely to have found out about them from our website, followed by SSO’s newsletter, staff or through a general online search
We are grateful for your thoughtful feedback and for taking the time to participate.